It's time!! The Halo is coming off!!
Kyle has been in the halo for nearly 11 months. November 8, 2011 - October 4, 2012. Decompression on Nov. 8, 2011. Fusion implants on Nov. 16, 2011.
Took Kyle to see his neurosurgeons on Sept. 24th. Explained to them he is still having difficulties in swallowing and his voice is muffled. Told them he is depressed. They agree the halo might be messing with his psyche and his sleep. They assessed him and agree the halo should come off. But they want to see another CT scan first. They ordered him to get a CT scan of the spine on the 25th to check out the fusion.
Two days later, I received an email from them mentioning the scan looks great. The halo can come off. Yahoo!! But they want to do it in the OR .... poo. Last time he was in the OR was a nightmare for a 'simple procedure'.
Took Kyle for pre-op yesterday. He is scheduled to get the halo removed on Thursday, Oct. 4th in the OR at 9am. The plan is to numb the pin sites and give him an oral sedation-type med. Kyle asked if his dad or I can be in the OR with him. No definite answer, so we will see. I'm hoping so and I hope they will allow us to video it.
My 11 yr. daughter says we need to celebrate "4th of Kyle" (because the procedure is happening on the 4th.) Time for a Halo Off party!!
1 comments:
You're an inspiration Kyle!
Once you're off the halo, you may want to join the patient (and survivor) support group http://www.chiarisupport.org/.
I am a member of the community and I would like you to know I will be sharing your story with the rest of the ChiariSupport.org family.
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