Kyle took his prescription of steroids from Dec. 11th to Jan. 4th for treating his swollen spinal cord.
Major changes occurred during this past month.
First of all, Kyle slept all night on Dec. 17th WITHOUT his BiPap autoSV machine. I was nervous to let him but he fell asleep fast and I checked on him several times throughout the night and he did fine. However, I still tell him every night to use his machine but it's been a hit and miss since 12/17. But it's weird, right? To think he was pausing in his sleep over 100 times an hour and it was because his spinal cord was swollen. All the sleep tests Kyle had to go through and waiting for a sleep machine could have been avoided...possibly. Grrr.
Secondly, he's been full of energy. I know steroids does that but he's been off the steroids for about 20 days now and he is still full of energy.
His voice came back! My favorite change!! His voice is slightly scratchy but definitely louder.
He has NOT vomited since Dec. 11th. Kyle's favorite change. ;)
He CAN sneeze. When he sneezed normal for the first time last month it surprised me because it's been a long time since he sneezed normal.
Swallowing food is easier and he does not have to drink water with every bite of food to push it down.
No headaches. A good thing!!
I'm truly thankful that Kyle has done well this past month, and I just want it to continue!!
His next MRI is this weekend and we meet the neurosurgeons on Monday, 1/28, to find out more about the next procedure. I'm hoping the next procedure can wait a while so Kyle can be Kyle!
Sad Ending to a New Beginning
4 years ago