Blog Carnival 2
The Ides of Madness
Alternatives to Breaking Down, Falling Apart or Cracking Up
Shalunya chose an appropriate topic, The Ides of Madness, for this month's blog carnival because March is widely known to be linked with 'madness'; linked in ways we may or may not be aware of. And by-the-way, March madness is not only about basketball. I believe the changing of the seasons and March equinox contribute to March madness. But this post is about Kyle's Ides of Madness with Chiari Malformation, the alternatives to breaking down, falling apart or cracking up.
Kyle is the one living with Chiari and I am the one supporting him. Sometimes, I can feel his madness, or maybe it's my madness. One of the most frustrating madness is when people look at him and are not aware of his pain. They are not aware of what he has gone through, what he will go through. They don't know he is trying his hardest to live with his discomfort. They don't know that he is heartbroken to never again be able to do things he use to such as ride roller coasters or continue with his Karate studies. But Kyle doesn't want people to pity him. He just wants people to understand him.
Kyle is strong mentally. He is not shy or afraid to speak his mind. He is not embarrassed of his scar or his halo. He doesn't care that people stop us in public and comment about his halo. But people feel like they have to say something that makes everyone laugh. Most people joke about it and Kyle goes along with it even though there is nothing funny about Chiari.
Keep Moving Forward
Kyle's alternative to breaking down and falling apart is just being Kyle. He is a 12 year old kid that loves to tease his sisters, avoid house chores, and play Xbox and Minecraft online with friends. He still plays with fire (yikes, I know). He still makes dinner for the family when it is his turn. He still helps out his dad at the shop.
I think he doesn't fall apart because he believes he will be ok. He believes everyday will be a good day. He doesn't concentrate on his pain or discomfort. And even though he often tells me his head hurts or his pin sites hurt he never takes any meds. I think he just likes me knowing how he is feeling. I think he likes me hugging him and letting him know I am here for him for whatever he needs.
Sad Ending to a New Beginning
4 years ago