Sad Ending to a New Beginning
11 years ago
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After my 2nd Surgery
There are four titanium screws to hold the halo in place which are screwed into my skull bone.
About Me
I like Minecraft and Call of Duty. I achieved green belt in Karate. I received an Honorary Black Belt. I play the drums. I'm the oldest kid in my family of six. And oh yeah, I have Chiari Malformation; my brain is not fitting where it should.
Hello
I'm Kyle. I was born with Klippel Feil syndrome and diagnosed with Chiari Malformation in Sept. 2011. I had my first decompression surgery in Nov. 2011. This blog is about me living with both, and my surgeries.
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Click on the 'About' link above and find the 'Email Me' button at the bottom of the page.
Post-Surgery
After my 2nd Surgery
Followers
Halo Screws
Posted by
Kyle
on Sunday, January 8, 2012
Labels:
halo
What is Chiari Malformation?
Chiari malformation is a life-threatening defect in which the lower part of the brain (cerebellum) is squeezed into the space of the upper part of the spinal cord.
MRI is the only way to find out if you have Chiari.
MRI is the only way to find out if you have Chiari.
What is Klippel Feil?
Klippel Feil is a congenital condition, where part of the cervical spine is fused. Also associated with other serious problems such as absent or abnormal kidneys, and spinal cord abnormalities.
What is a Zipperhead?
Anyone who has had decompression surgery for Chiari Malformation. I'm guessing the term 'zipperhead' is because of the long scar down the back of the head and neck.
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chiari
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symptoms
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surgery
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halo
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post-surgery
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CT scan
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Klippel Feil
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picture
(7)
awareness
(6)
chiari carnival
(6)
MRI
(5)
neurosurgeon
(5)
headache
(4)
sleep apnea
(4)
brain stem
(3)
rare disease
(3)
spinal cord
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traction
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pneumothorax
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MS
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karate
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parkinson
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1 comments:
The pin sites can get infected so they must be cleaned two times everyday with diluted hydrogen peroxide.
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