I like Minecraft and Call of Duty. I achieved green belt in Karate. I received an Honorary Black Belt. I play the drums. I'm the oldest kid in my family of six. And oh yeah, I have Chiari Malformation; my brain is not fitting where it should.
I'm Kyle. I was born with Klippel Feil syndrome and diagnosed with Chiari Malformation in Sept. 2011. I had my first decompression surgery in Nov. 2011. This blog is about me living with both, and my surgeries.
Want to email me?
Click on the 'About' link above and find the 'Email Me' button at the bottom of the page.
I'm so angry and sad and...well I just want my Kyle feeling better. I'm afraid his Chiari symptoms are returning. And yet he still is wearing the halo, "for three more months", his surgeons say. But in the meantime, Kyle is losing his voice again. He won't eat, he's lying down all down, and he's weak. I want answers. I want to know if his spinal fluid is flowing correctly. I want to know why he is losing his voice again.