When it Rains, it Pours

Chiari Carnvial 3
When it Rains, It Pours
Dealing with difficult people in addition to dealing with a difficult illness

As you all know by now, I'm 12 years old and in middle school. Well, actually I don't get to go to school right now because of my condition so the school district sends a teacher to my home twice a week (who is a very, very nice teacher by-the-way). Anyway, I hate having a condition that prevents me from going to school. I never thought I would say that but school is where I got to see my friends everyday. Sadly, my friends are moving on without me.

So, I'm still wearing this dang halo. And it sucks. It sucks because it is uncomfortable and awkward. But it also sucks when I'm out and about with my mom. Kids always stare and stare and stare at me and in their loud kid voice, "look at the strange boy, mommy". But the moms usually try to hush their kid and force them to move on. Please, look at me! Ask me why I have a halo. Take the time to understand what I have gone through.

I can't say that I have really dealt with anyone difficult. My parents take care of that for me. But I am dealing with a difficult illness. And I hope life won't always be difficult.

2 comments:

Shalunya said...

Kyle it is because of you that I am never afraid to approach someone who looks different. I make direct eye contact and smile. I try to see thru their eyes into their soul. Thanks for being such a great example at such a young age.

Christy said...

This is Kyle's mom.

Last Wednesday we were running around doing errands and we stopped at a pizza place to eat. We ordered the pizza to-go but we it was a beautiful day so we took it outside to eat. Kyle sat next to me, my 1 yr. was on my lap, my girls and my husband sat across from us. When we were almost done, an elder using a walker came up to us and told us we had a good looking, polite family. So sweet of him. Then he looked at Kyle and said, "How are you young man? Are you ok? What happened, why are you in a halo?" The gentleman took the time to listen to Kyle. I was holding back tears.

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