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Kyle's Chiari Malformation Battle

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About Me

I like Minecraft and Call of Duty. I achieved green belt in Karate. I received an Honorary Black Belt. I play the drums. I'm the oldest kid in my family of six. And oh yeah, I have Chiari Malformation; my brain is not fitting where it should.

Hello

I'm Kyle. I was born with Klippel Feil syndrome and diagnosed with Chiari Malformation in Sept. 2011. I had my first decompression surgery in Nov. 2011. This blog is about me living with both, and my surgeries.

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Post-Surgery

After my 2nd Surgery

Followers

Shannon's Hope Foundation

Posted by Christy on Friday, March 9, 2012

Labels: awareness, chiari, rare disease

Please take a moment to read about Shannon's Hope Foundation, a non-profit organization devoted to increasing awareness on Chiari Malformation.

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What is Chiari Malformation?

Chiari malformation is a life-threatening defect in which the lower part of the brain (cerebellum) is squeezed into the space of the upper part of the spinal cord.

MRI is the only way to find out if you have Chiari.

What is Klippel Feil?

Klippel Feil is a congenital condition, where part of the cervical spine is fused. Also associated with other serious problems such as absent or abnormal kidneys, and spinal cord abnormalities.

What is a Zipperhead?

Anyone who has had decompression surgery for Chiari Malformation. I'm guessing the term 'zipperhead' is because of the long scar down the back of the head and neck.

Labels

chiari (38) symptoms (18) surgery (13) halo (12) post-surgery (11) CT scan (9) Klippel Feil (8) picture (7) awareness (6) chiari carnival (6) MRI (5) neurosurgeon (5) headache (4) sleep apnea (4) brain stem (3) rare disease (3) spinal cord (3) traction (3) pneumothorax (2) MS (1) karate (1) parkinson (1) rehab (1) v-tach (1)

Blog Archive

► 2013 (1)
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▼ 2012 (39)
- ► December (1)
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- ► April (1)
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- ► January (11)

► 2011 (23)
- ► December (1)
- ► November (7)
- ► October (15)

My Blog List

Chiari Carnival

Sad Ending to a New Beginning
11 years ago
Zipperheads: Living with Arnold Chiari Malformation

It's a New Year
11 years ago
Shannon's Hope

Bakersfield teen seeks surgery for brain disorder
12 years ago
Chiari Life

Chiari Malformation Links

International Chiari Association
Conquer Chiari
Shannon's Hope Foundation
Chiari Online Support Group
American Syringomyelia & Chiari Alliance Project
The Chiari Institute
Mayfield Clinic
NINDS

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THIS BLOG IS MY PERSONAL STORY AND OPINION. I DO NOT ENDORSE OR DIAGNOSE ANY PRODUCTS, PROCEDURES, OR DOCTORS.

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